About me My story

Comments

• At 12:12, 25 October 2009 Julie wrote:

  Helen, please forgive me for being so insensitive, but as a fibromyalgia sufferer, also suffering from deep depression at the moment, I deeply regret that I am sometimes guilty of speaking my mind before I think of the consequences. I am usually very tactful, but my current state of mind has changed my personality. Please accept my most sincere apology, I now appreciate that travelling to London and doing what you did was no mean feat, and I salute you. I suffer alone, my doctor thinks I'm a nuisance, my family and friends think that because I look alright I am, and I am feeling at the end of my tether with it all. I am similar to you, I am 44 years of age, married for 23 years and have two teenage sons, and I relate to your story completely. Well done on your accomplishment, and please accept my apology. Take care, and I hope that you, like me, soon find a way out of this living hell by way of medical help or some other means, yet to be discovered ...

• At 13:40, 14 October 2009 Helen B wrote:

  Julie - I am sorry you feel that way - what have you done to raise awareness?

  Hindsight is a wonderful thing and I agree I could have done things differently - ensuring the banners were more visible is just one of them.

  Being up on the plinth is a very strange experience and although it took a lot of arranging to get there and to do what I did I agree it could have been a lot better.

  I have put together a website: www.astatueseyeview.info where there are links to Fibromyalgia Association UK and you can actually see the photos I took.

  My plinth hour was actually for ME - it was something that I could do and enjoy even with Fibromyaglia - raising awareness was something I did alongside as I explain in My Story.

  Julie - if you feel I did not do enough to raise awareness then please help me out and spread the word about my website and more importantly the FAMUK website and do feel free to contact me via the website.

  Helen

• At 20:26, 09 October 2009 shams wrote:

  I have recently been diagnosed having fibomylagia.

  I wish to know how it would be possible to prevent advancing my illness and pain.

  thanks for supporting people who have this illness.

• At 11:36, 07 October 2009 Julie wrote:

  Well done, but what a waste of an opportunity to tell the world about fibromyalgia. This could have been a great way of raising awareness of the condition, but I've just sat through an hour's commentary of who you are photographing, saying hello to friends and family and generally doing no more than you could have done on the ground. The flags completely covered up the Fibromyalgia Association banner. You spent a lot of your time adjusting the tripod and camera to get a 360 degrees angle of Trafalgar Square, photographing musicians who had nothing to do with fibromyalgia. Poor old Patsy was doing more to raise awareness by sitting in her wheelchair whilst holding onto a fibromyalgia poster and apparently there were people on the ground distributing fibromyalgia leaflets. 52 minutes into the filming there is actually a plug for the fibromyalgia website - at last! Sorry, but this was such a good opportunity and was so disappointing. A wasted hour :(

• At 18:12, 28 September 2009 sarah ann sproston wrote:

  what an amazing thing to do. an experience you will never forget. keep up the good work. on behalf of me and many other FM suffers, thank you,xxx

• At 15:06, 07 September 2009 Pam wrote:

  Well done! It's the start of Fibromyalgia Awareness Week this week!!! 7/9/09 the more understanding and awareness about FM the better!

• At 19:45, 06 September 2009 Sal wrote:

  To Hero Helen,

  Thank you for doing this on behalf of all fibros. You're a braver lass than me!

  xx

• At 19:34, 03 September 2009 gillian broughton wrote:

  well done , made up the weather good for you , you was so brave

• At 09:27, 24 August 2009 Heidi Barnett wrote:

  What a brave lady you are Helen...a big, but gentle pat on the back for getting up there on behalf of us Fibro's!!!

  Wish you luck for the future and hope you enjoyed your hour xx

• At 16:49, 19 August 2009 Andrew B wrote:

  I've always thought of you as being statuesque!

  I bet you really feel like you've gone up in the world!

  Your family have always put you on a pedestal!

  (insert other witticisms here)

  Great cause. Can't wait to see your photos!

• At 16:18, 19 August 2009 Vicki T wrote:

  Wow - i can see you really clearly on the webcam Helen! Well done, I'm really proud of you!

• At 16:10, 19 August 2009 richard wrote:

  I don't lnow what to say - you look like a beautiful bumble bee crossed with a ladybird ! Brave girl, well done.

  Love Richard

• At 16:08, 19 August 2009 Judy wrote:

  Wow, what a lovely dress!!!!!!!!!!!!!!! Be careful you don't fall off. XXXXXXXX

• At 13:03, 19 August 2009 Dave Butcher wrote:

  I'll be watching online and looking out for your photos in due course. Good luck with the weather-- and enjoy the hour of fame-- and may God bless you for helping the Fibromyalgia people.

• At 11:25, 19 August 2009 Sal wrote:

  Thanks for doing this on behalf of all fibromites!xx

• At 10:50, 19 August 2009 Williams Family wrote:

  Good Luck for today. If the weather forecasts are correct - don't forget your factor 50 and hat!

  All the best - Alison, Malcolm, Megan, Grace and Charlie

• At 09:47, 19 August 2009 Des Quinn wrote:

  Good luck on the plinth today and great effort.

• At 08:30, 19 August 2009 lisak wrote:

  Good Luck today !!! Hope you enjoy the experience & such a Brilliant Idea of raising awareness.ENJOY ~ Lisa xx

• At 10:52, 18 August 2009 Sarah L wrote:

  Well done you. Raising awareness for FM is great. Look forward to seeing your photos. Have fun and enjoy your hour. Sarah XX

• At 10:52, 18 August 2009 Sarah L wrote:

  Well done you. Raising awareness for FM is great. Look forward to seeing your photos. Have fun and enjoy your hour. Sarah XX

• At 23:33, 17 August 2009 Becky Magson wrote:

  Wow, good on you for getting in there and doing it for us FM sufferers! So pleased you've got such a great opportunity. Hope you have great fun doing it too. :-)

  Becky

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